This handsome set of twins brought me aware to what a CHD is. They are amazingly happy and joyous children. But there family's journey to get to where they are now has been long and rough!
Odin and Griffen were born January 05 2012 they were at 36 weeks gestation. Odin was born with Right atrial isomerism/heterotaxy, unbalanced AVSD, DORV, anterior aorta, subvalvar and valvar pulmonary stenosis, asplenia and had his FIRST open heart surgery July 31st. Griffen also has a minor CHD called Dextracardia.
The boys have fought there way threw so much. and look at there birthday picture they look like nothing has ever happened! These two are my heroes and why I am raising awareness. If I had never cam across Odin's facebook/ I would have never know this existed. And I am not alone in this. A lot of people are not aware. and the word needs spread!
Odin's Facebook can be found here.
Odin and Griffen were born January 05 2012 they were at 36 weeks gestation. Odin was born with Right atrial isomerism/heterotaxy, unbalanced AVSD, DORV, anterior aorta, subvalvar and valvar pulmonary stenosis, asplenia and had his FIRST open heart surgery July 31st. Griffen also has a minor CHD called Dextracardia.
The boys have fought there way threw so much. and look at there birthday picture they look like nothing has ever happened! These two are my heroes and why I am raising awareness. If I had never cam across Odin's facebook/ I would have never know this existed. And I am not alone in this. A lot of people are not aware. and the word needs spread!
Odin's Facebook can be found here.